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Time is Running Out
Time is running out to place your bids in our silent auction. Race over for your chance to score BIG prizes for a great cause! Run/Walk/Roll Out Duchenne 5k is coming up THIS Saturday, May 31, 2025 at Highbanks Metro Park! Get registered now to join the fun!
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Score Big in Duchenne Warriors Foundation’s Silent Auction
Ready…Set…GO! It’s almost time for Run/Walk Out Duchenne 2025! If you haven’t registered yet, snag your spot now ⤵ We’re excited to announce a silent auction packed with great prizes from fabulous local and national vendors, Bidding has already started, so click the image below to score big!
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Welcome home, Jake
Did you hear the news? After 65 days in the hospital, Jacob is HOME! Join us for an open house (complete with donuts and coffee) at Discover Christian Church on Saturday, July 20 @ 9-11 am. We can’t wait to see you and thank you all for your support during Jake’s recovery. 📌 2900 Martin…
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Jacob’s Journey / Day 59
June 28, 2024 19 days without a breathing tube!!! Wednesday morning, Jacob successfully passed his radiology swallow exam. This means that Jacob was able to open up his food intake to almost any food. Small bites with fluids between bites. Today, Jacob had his feeding tube removed. They feel that Jacob can maintain his own…
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Jacob’s Journey / Day 52
June 21, 2024 Jacob was moved out of ICU unit. He is now in pulmonary unit as he continues to heal. Jacob is now 11 days removed from removal of breathing tube. Jacob uses ventilator overnight. Jacob has been able to go off the ventilator during the day now for several hours at a time.…
As you may know Jacob Jarvis has Duchenne Muscular Dystrophy (DMD). DMD is a muscle wasting disease.
At first boys with DMD begin to lose strength in major muscle groups such as legs and lose ambulation (ability to walk) in the early teen years. But all our organs (Heart, Lungs, Kidney’s, etc) are muscles too and lose strength over time as well. This means that breathing becomes more difficult, Heart pumps get weaker over time, arms get weaker, and in general the entire body gets weaker.
Jacob began this latest medical hospitalization on May 1 with difficulty breathing. He first went to the ER but was transferred to the PICU at Nationwide Childrens.
Through testing it was revealed that Jacob had Pneumonia in his right lung.
3 days later saturday night Jacob’s right lung collapsed as did most of bodily stats (HR, PulseOxy, BP). The alarms went off and caused a rush of doctors and medical professionals to flood the room with all kinds of medical care. After Jacob was stabilized the medical staff intubated (inserted a breathing tube) Jacob along with a feeding tube. From that trauma Jacob’s body needed extra support and care. Since Intubated Jacob could not talk since the vocal cords were impeded.
Over the next 6 days Jacob respiratory stats slowly increased.
Jacob did have a few medical hiccups (irregular heart rates, low BP, etc..) along the way but started healing.
On Monday May 20th in the morning Jacob was extubated (Breathing tube removed) and began breathing using a Bi-Pap mask.
But late Monday night Jacob’s breathing became stressed. Medical staff tried several different measures to keeps Jacob breathing going. But after 2-3 hours of unsuccessfully helping Jacob breath, it was decided to re-intubate him. Basically 18 hours later he was back on the breathing tube.
Thursday May 23 it was determined that Jacob needed support of his regular Neuromuscular team at Cincinnati Children’s Hospital. On Saturday morning Jacob was Flown from Columbus to Cincinnati.
Jacob’s hospital journey still continues and while we do know how Jacob will heal, we have be told this process could continue for 4-8 weeks or longer. Meaning Jacob could be in hospitals for months healing…